What is Public Involvement?
Public Involvement (PI) (sometimes referred to as Patient and Public Involvement or PPI) in research is defined as research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
It is an active partnership between researchers and members of the public.
Why you may want to include Public Involvement support
- identify relevant condition-specific patient support groups;
- advice on how to include public involvement at each stage of the research cycle in meaningful and appropriate ways;
- funding providers value the knowledge and experience of patients and members of the public.
What expertise can a Public Involvement specialist offer?
- tailored face-to-face advice specific to your research project;
- a toolkit of examples and resources to develop an appropriate Public Involvement strategy both to design and deliver your research project;
- access to the RDS NENC Public Involvement Consumer Panel for constructive feedback (face to face or online) on the potential for direct patient benefit, feasibility, readability and acceptability.
What to think about before meeting with a Public Involvement advisor
- have you spoken to any patients about your research; what did they think of your plans;
- would any of your patients like to be involved in helping you to plan and deliver your study;
- do you have access to any existing groups of patients who might be able to give a helpful view on your research ideas?
INVOLVE – Briefing notes for researchers – http://www.invo.org.uk/resource-centre/resource-for-researchers/
A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards – Raksha Pandya-Wood, Duncan S. Barron and J. Elliott. https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-017-0058-y